Why Palliative and End of Life Care Matters for Children and Young People

:

Palliative care is an essential component of healthcare that focuses on improving the quality of life for individuals with life-threatening illnesses. While often associated with adults, palliative care is equally important for children and young people facing terminal conditions. This article explores the significance of palliative and end of life care for children and young people, highlighting its benefits and challenges, and emphasizing the need for specialized support and compassion during these difficult times.

Understanding Palliative and End of Life Care for Children

1. What is Palliative Care?

Palliative and End of Life Care for Children and Young People: Home, Hospice, Hospital

by Anne Grinyer (1st Edition, Kindle Edition)

4.1 out of 5

Language	:	English
File size	:	730 KB
Text-to-Speech	:	Enabled
Screen Reader	:	Supported
Enhanced typesetting	:	Enabled
Print length	:	204 pages
Lending	:	Enabled

FREE

2. Scope of Palliative Care for Children and Young People

3. Importance of Palliative Care for Children: Addressing Physical, Emotional, and Social Needs

Challenges in Pediatric Palliative and End of Life Care

1. Lack of Awareness and Access to Specialized Care

2. Emotional Burden on Children, Families, and Healthcare Providers

3. Integrating Palliative Care into Existing Treatment Plans

Benefits of Palliative and End of Life Care for Children

1. Enhanced Quality of Life: Providing Comfort and Symptom Management

2. Emotional and Psychological Support for Children, Young People, and Families

3. Facilitating Communication and Shared Decision Making

Special Considerations for Delivering Palliative Care to Children and Young People

1. Age-Appropriate Communication and Understanding

2. Involvement of Family and Support Networks

3. Cultural and Religious Sensitivity

Role of Healthcare Providers and Institutions

1. Collaboration and Interdisciplinary Approaches

2. Training and Education for Healthcare Professionals

3. Integration of Palliative Care into Pediatric Services

: Ensuring Dignity and Compassion for All Children

In , palliative and end of life care for children and young people plays a crucial role in improving their quality of life and providing support to their families during challenging times. It offers physical, emotional, and social support, enhancing communication and shared decision making. However, there are challenges such as lack of awareness and integration of palliative care in pediatric services.

With the proper training and education of healthcare professionals, improved access to specialized services, and increased awareness, we can ensure that every child and young person facing a life-threatening illness receives the compassionate care they deserve. Let us work together to provide dignity, comfort, and support to children and families in their difficult journey.

Palliative and End of Life Care for Children and Young People: Home, Hospice, Hospital

by Anne Grinyer (1st Edition, Kindle Edition)

4.1 out of 5

Language	:	English
File size	:	730 KB
Text-to-Speech	:	Enabled
Screen Reader	:	Supported
Enhanced typesetting	:	Enabled
Print length	:	204 pages
Lending	:	Enabled

FREE

“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.”
From the foreword by Simon Davies , CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues.

This title is essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families.

• A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses
• Timely and topical, tying in with the Department of Health palliative care strategy ‘Better Care: Better Lives’
• Written in an accessible style that does not assume either detailed medical or theoretical knowledge
• Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital
• Provides valuable insights into the experiences of parents, children and young people